Thank you for the excellent information here! Some of it was new to me. I follow many of the people you suggested already. I have had what I believe to be long covid since mid 2021. Not as serious as POTS, but with PEM and energy depletion, brain fog and other symptoms that reoccur. Thankfully some improvements noted recently. I think the latest booster did some good (?) Thanks again for your effort and time. Best wishes to you.
You're welcome. Each post in this series is proving difficult to write. So much more is known to science than in early 2020, there's no way I can be comprehensive here. Hopefully I bring up some bits that could be useful.
I am so sorry you have this. I wouldn't downplay your symptoms. PEM is a serious impediment. Do anything at all and it kicks in. The symptoms you mention are in the area that overlaps with ME/CFS. I hope you'll be able to get some ideas that help, not only from the people you follow but also from some of the ME/CFS groups.
Some Long COVID patients do improve after getting a COVID booster. That you are one of those is encouraging. Your immune system still has some ability to fight this when it gets a little help. Some people get worse or don't recognize any change, and there's no good way to guess ahead of time which way it will go.
I hope you'll keep getting improvements. They may be small, but if you can get enough of them, they can add up to a better life.
Thank you for the excellent information here! Some of it was new to me. I follow many of the people you suggested already. I have had what I believe to be long covid since mid 2021. Not as serious as POTS, but with PEM and energy depletion, brain fog and other symptoms that reoccur. Thankfully some improvements noted recently. I think the latest booster did some good (?) Thanks again for your effort and time. Best wishes to you.
You're welcome. Each post in this series is proving difficult to write. So much more is known to science than in early 2020, there's no way I can be comprehensive here. Hopefully I bring up some bits that could be useful.
I am so sorry you have this. I wouldn't downplay your symptoms. PEM is a serious impediment. Do anything at all and it kicks in. The symptoms you mention are in the area that overlaps with ME/CFS. I hope you'll be able to get some ideas that help, not only from the people you follow but also from some of the ME/CFS groups.
Some Long COVID patients do improve after getting a COVID booster. That you are one of those is encouraging. Your immune system still has some ability to fight this when it gets a little help. Some people get worse or don't recognize any change, and there's no good way to guess ahead of time which way it will go.
I hope you'll keep getting improvements. They may be small, but if you can get enough of them, they can add up to a better life.