Thank you for putting a spotlight both on China's success at keeping infections down, and the sleeping giant problem that is longhaul covid. I was one of the first to come down with long covid before it had a name, back in February 2020. I became symptom and relapse free after about a year and a half, but I know of many others who are …
Thank you for putting a spotlight both on China's success at keeping infections down, and the sleeping giant problem that is longhaul covid. I was one of the first to come down with long covid before it had a name, back in February 2020. I became symptom and relapse free after about a year and a half, but I know of many others who are still incapacitated. I created a video posted on YouTube with my friend, Shane, covering what China knows (but isn't saying) and how long-haulers are the canaries in the proverbial coalmine.
I watched your video. You did what ME/CFS patients have been doing for decades, learning what you can & trying things in an effort to ease what's wrong. What you tried included a number of things that are often used by ME/CFS patients.
One big difference is that you didn't address one aspect at a time. You took on a handful at once, repeatedly. There is risk in that because it's hard to distinguish the effect of each thing you tried. But eventually you reclaimed your lost ground, and you seem to recognize that was partly due to persistent effort and partly a bit of luck.
Long COVID and ME/CFS overlap significantly. There are certain stripes that run through all the patients, e.g. exercise therapy and cognitive behavior therapy can make patients permanently more ill and more disabled. But both have highly individual impact on people, so response to therapies is highly individual. ME/CFS patients often say YMMV (your mileage may vary). Although you didn't use that phrase, you essentially said the same, that what worked for you may not work for everyone else. Some people are just stuck with it.
Researchers and doctors warn that COVID is setting the stage for long term adverse health problems. I think we have about the same information in front of us that China does. What's glaringly divergent is how the information gets used. China habitually takes a long view. Other countries tend to plan for a year, five years, ten years... China makes 50 year plans. It's hard to get people to put up with burdens now to reduce burdens so far ahead, but in their system they can impose their plan. In ours, we need a critical mass of the population to choose to do that, and it generally doesn't happen.
I agree with you that COVID long haulers are a glimpse of what's coming. And its effects on international affairs will be seismic.
Thank you for your comment and for the effort it took to make your video.
Yes, I was inspired to write and sing and play the song, "Pacing and Rest" based on advice I received from a recovered CFS person, adopting the key lessons she'd learned from one of her best doctors--and that's the advice I stuck to for 90 days of ensuring I got optimal sleep every single day. That song is the one that plays at the end of the video about China and long covid, and the apparent serious issues with the spike protein itself (which seems to be what China is taking so seriously). I have a (very long) detailed log of what I was trying, month by month that goes into more detail than the video; I kept the video rather brief, rather than going through what I learned along the way about such things as the Niacin cycle that was related to my past intensive physical exercise activities; my allergies/asthma and the MCAS connection; and the details about monocytes and viral debris. I have been emailing that much more detailed, month by month log to people who request it from me, always taking care to indicate this worked for me, and parts of it may prove helpful to others.
Thank you for putting a spotlight both on China's success at keeping infections down, and the sleeping giant problem that is longhaul covid. I was one of the first to come down with long covid before it had a name, back in February 2020. I became symptom and relapse free after about a year and a half, but I know of many others who are still incapacitated. I created a video posted on YouTube with my friend, Shane, covering what China knows (but isn't saying) and how long-haulers are the canaries in the proverbial coalmine.
https://youtu.be/feqoj_5aRJk
I watched your video. You did what ME/CFS patients have been doing for decades, learning what you can & trying things in an effort to ease what's wrong. What you tried included a number of things that are often used by ME/CFS patients.
One big difference is that you didn't address one aspect at a time. You took on a handful at once, repeatedly. There is risk in that because it's hard to distinguish the effect of each thing you tried. But eventually you reclaimed your lost ground, and you seem to recognize that was partly due to persistent effort and partly a bit of luck.
Long COVID and ME/CFS overlap significantly. There are certain stripes that run through all the patients, e.g. exercise therapy and cognitive behavior therapy can make patients permanently more ill and more disabled. But both have highly individual impact on people, so response to therapies is highly individual. ME/CFS patients often say YMMV (your mileage may vary). Although you didn't use that phrase, you essentially said the same, that what worked for you may not work for everyone else. Some people are just stuck with it.
Researchers and doctors warn that COVID is setting the stage for long term adverse health problems. I think we have about the same information in front of us that China does. What's glaringly divergent is how the information gets used. China habitually takes a long view. Other countries tend to plan for a year, five years, ten years... China makes 50 year plans. It's hard to get people to put up with burdens now to reduce burdens so far ahead, but in their system they can impose their plan. In ours, we need a critical mass of the population to choose to do that, and it generally doesn't happen.
I agree with you that COVID long haulers are a glimpse of what's coming. And its effects on international affairs will be seismic.
Thank you for your comment and for the effort it took to make your video.
Yes, I was inspired to write and sing and play the song, "Pacing and Rest" based on advice I received from a recovered CFS person, adopting the key lessons she'd learned from one of her best doctors--and that's the advice I stuck to for 90 days of ensuring I got optimal sleep every single day. That song is the one that plays at the end of the video about China and long covid, and the apparent serious issues with the spike protein itself (which seems to be what China is taking so seriously). I have a (very long) detailed log of what I was trying, month by month that goes into more detail than the video; I kept the video rather brief, rather than going through what I learned along the way about such things as the Niacin cycle that was related to my past intensive physical exercise activities; my allergies/asthma and the MCAS connection; and the details about monocytes and viral debris. I have been emailing that much more detailed, month by month log to people who request it from me, always taking care to indicate this worked for me, and parts of it may prove helpful to others.